Looking for some answers for my 11-year-old daughter. She has been suffering from chronic episodes of abdominal pain, lower-intestinal pain and cramping, nausea, vomiting and large, soft stools which turns into watery diarrhea for the past 3-1/2 years. The episodes can happen any time of day, but they usually occur in the morning. She has pain in her small intestines as well as what seems to be lower-intestinal pain and cramping. She always vomits and has large bowel movements that start out like dark chocolate pudding and then turn into watery diarrhea. The vomiting and diarrhea seems to stop when she has gotten everything out of her system. I can't emphasize enough that the vomit and diarrhea have the same foul smell. A few episodes have continued for a couple of days but most last less than one day. We have a little warning with abdominal pain and stinky gas 1-2 days before the episode. The episodes can be one week apart or 4 months apart.
She has had andEGD and colonoscopy. The only adverse results were slightly lower sucrase and glycoamylase enzymes. Her lactase enzymes were normal but she is absolutely lactose intolerant. She also had slightly elevated AST and ALT which came back even higher a few months later.
The sucrose breath test and DNA tests both came back negative for CSID and malabsorbtion.
We have tried a low sugar/low carb diet and she had fewer episodes, but her GI doc said we should add fruit back to her diet, that her sugar enzymes were not that low.
We had some blood work done during an episode in December which showed elevated WBC, but we had it repeated after an episode yesterday and her WBC was normal.
She previously was diagnosed with cyclic vomiting syndrome but those episodes were completely different and she seemed to grow out of them shortly after she was diagnosed at age 4 yrs 9 mos. With those episodes, we had no warning, she had no abdominal pain, they were almost always 28 days apart and always started very early in the morning - severe nausea would wake her out of a sound sleep, she would throw up every 5-15 minutes like clockwork for about 4 hours, she was very pale ... After an episode, she would sleep for a couple of hours and wake up feeling perfectly fine.
These episodes seem to be bacteria related (with the foul smelling vomit and stool). However, I wonder if the elevated liver enzymes are indicative of anything. She has a follow-up appt. with her GI doc at Mayo next week. Hoping to have some more theories to throw at her doc since currently, they have no idea what is causing these episodes.
She has had andEGD and colonoscopy. The only adverse results were slightly lower sucrase and glycoamylase enzymes. Her lactase enzymes were normal but she is absolutely lactose intolerant. She also had slightly elevated AST and ALT which came back even higher a few months later.
The sucrose breath test and DNA tests both came back negative for CSID and malabsorbtion.
We have tried a low sugar/low carb diet and she had fewer episodes, but her GI doc said we should add fruit back to her diet, that her sugar enzymes were not that low.
We had some blood work done during an episode in December which showed elevated WBC, but we had it repeated after an episode yesterday and her WBC was normal.
She previously was diagnosed with cyclic vomiting syndrome but those episodes were completely different and she seemed to grow out of them shortly after she was diagnosed at age 4 yrs 9 mos. With those episodes, we had no warning, she had no abdominal pain, they were almost always 28 days apart and always started very early in the morning - severe nausea would wake her out of a sound sleep, she would throw up every 5-15 minutes like clockwork for about 4 hours, she was very pale ... After an episode, she would sleep for a couple of hours and wake up feeling perfectly fine.
These episodes seem to be bacteria related (with the foul smelling vomit and stool). However, I wonder if the elevated liver enzymes are indicative of anything. She has a follow-up appt. with her GI doc at Mayo next week. Hoping to have some more theories to throw at her doc since currently, they have no idea what is causing these episodes.
Chronic, episodic vomiting and diarrhea
0 commentaires:
Enregistrer un commentaire