Hello everyone! New to the board here, and I am really hoping for some opinions. I cant get in to my rheumy referral till October 25th and really, I may go crazy waiting that long.
First let me start with my labs. I had a full work-up done, CBC, Thyroid, Lipid Panel, etc, everything came back normal with the exception of:
Positive ANA Panel w/ homogeneous pattern
Positive CCP AB IGG
Low Vitamin D
Low end of normal on WBC.
(I did have a negative RF Factor..)
My NP seems to think this is Lupus or RA and I was referred to rheumatology.
Let me explain my symptoms:
Around 3 years ago, I began have periods where my feet and calves would cramp to the point they were contorted for several minutes. Extremely fatigued. My toes would go numb. Running along the outside of my hands would go numb (pinky and ring finger), stiff hands in the morning that make it hard to make a fist. Really bad TMJ that results in shoulder/neck pain. I've been getting this rash (not a butterfly rash), that began on my eyelids - the skin there would get red, thick, oily/scaly, now it appears around my chin/mouth - suddenly I'll break out in tiny white pumps and the skin is red and it somewhat stings, and the edge of my lip will get red, thick and scaly. Recently, one of my finger joints has been sore for several weeks, 24/7. Yesterday, my index finger was swollen and painful the entire day.
What is also interesting, 4 years ago I had a sleep study done for excessive daytime sleepiness and parasomnias. My study showed increased alpha-wave intrusions in my slow wave sleep that would bring me up to a stage 2 sleep where I stayed most of the night. The neurologist said she sees this in patients with pain disorders (an alpha intrusion is a pain intrusion) - but anyway at the time I had several surgeries on my hip and contributed my pain to that. Pain in my neck and shoulders I contributed to my TMJ - but now I'm beginning to wonder if this was actually autoimmune related.
Anyway, any thoughts? I'm so confused by my laps. I know the ANA w/ homogeneous pattern is indicative of Lupus, however I've read the positive CCP is strongly sensitive towards RA. But my RA Factor was negative. Not sure about the low vitamin D.
Thoughts? Please! I'll drive myself crazy worrying. I'm a very active mom with 3 young kids, and lately I feel like I've been hit by a truck.
First let me start with my labs. I had a full work-up done, CBC, Thyroid, Lipid Panel, etc, everything came back normal with the exception of:
Positive ANA Panel w/ homogeneous pattern
Positive CCP AB IGG
Low Vitamin D
Low end of normal on WBC.
(I did have a negative RF Factor..)
My NP seems to think this is Lupus or RA and I was referred to rheumatology.
Let me explain my symptoms:
Around 3 years ago, I began have periods where my feet and calves would cramp to the point they were contorted for several minutes. Extremely fatigued. My toes would go numb. Running along the outside of my hands would go numb (pinky and ring finger), stiff hands in the morning that make it hard to make a fist. Really bad TMJ that results in shoulder/neck pain. I've been getting this rash (not a butterfly rash), that began on my eyelids - the skin there would get red, thick, oily/scaly, now it appears around my chin/mouth - suddenly I'll break out in tiny white pumps and the skin is red and it somewhat stings, and the edge of my lip will get red, thick and scaly. Recently, one of my finger joints has been sore for several weeks, 24/7. Yesterday, my index finger was swollen and painful the entire day.
What is also interesting, 4 years ago I had a sleep study done for excessive daytime sleepiness and parasomnias. My study showed increased alpha-wave intrusions in my slow wave sleep that would bring me up to a stage 2 sleep where I stayed most of the night. The neurologist said she sees this in patients with pain disorders (an alpha intrusion is a pain intrusion) - but anyway at the time I had several surgeries on my hip and contributed my pain to that. Pain in my neck and shoulders I contributed to my TMJ - but now I'm beginning to wonder if this was actually autoimmune related.
Anyway, any thoughts? I'm so confused by my laps. I know the ANA w/ homogeneous pattern is indicative of Lupus, however I've read the positive CCP is strongly sensitive towards RA. But my RA Factor was negative. Not sure about the low vitamin D.
Thoughts? Please! I'll drive myself crazy worrying. I'm a very active mom with 3 young kids, and lately I feel like I've been hit by a truck.
Confused, maybe lupus, pls help! :)
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